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Post by pavon on Dec 9, 2005 10:03:12 GMT -5
I was hopping to have advise on how to cope with being alone?
My doctor is almost positive that i have endo because of all of my symptoms. i going for my first laser lap in January or February.
Every month i cry and beg for the pain to go away, sometimes this pain last for two hole weeks. The only person who understands me and is patient with me is my lovable BF. thank god i have him, Its kind of depressing knowing that not even your family believes the amount of pain a person can suffer with this freaking disease.
I feel so alone and scared. I thank the person who started this site cuz i feel like its the only place i can be myself now. Not pretend that I'm not in pain cuz people think I'm just seeking attention( the last thing i want)
Thank you for listening.
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Post by friendo on Dec 9, 2005 11:54:16 GMT -5
Hi Pavon,
I've just read your post, and I am so very sorry for your pain. Just wanted to let you know that what you are feeling, is truly understood, certainly by me, and very likely by many others here. We all know the pain, the anguish, the isolation... the despair.
But, many know the other side of this sword as well. The strength that comes with getting back up after numerous knockdowns, the wisdom that comes with hindsight, that setbacks can turn out to be beneficial alterations of your path.
We are all individual, live different lives, and have our own unique experiences with endometriosis, but we share one thing, all of us, and that is the understanding of what it is to live with it. Or rather, co-exist with it. But boards and forums like this can be such a helpful tool, particularly when you are feeling overwhelmed and lost. We can come together, share our personal experiences, be they surgical, pharmaceutical and/or complimentary/alternative/holistic, and perhaps even more importantly, offer the understanding and support for one another when we need it most.
You said, " I feel so alone and scared." You are most definately not alone here. This site, imho, is THE most informative on the net. Carolyn has done such an amazing job. There is so much excellent, sound information here at endo-resolved, i would suggest reading through it all, slowly at your own pace, understanding and trusting, that the knowledge you will glean within these pages, and within yourself, can channel the fear and apprehension you are feeling now, to a strong and more positive approach toward your diagnosis.
Take care, wishing you well.
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Post by chrisseh5 on Dec 9, 2005 16:37:44 GMT -5
Oh I know how you are feeling. I to feel the same way. It's nice to know there is a reason for what your going through but then to sit there and think it will never go away, and if it does it will more then likely come back. I have been feeling this way a lot myself. I have a hard time going out becasue of the pain I'm in. I love this site ! It lets you know there is someone else out there who understands, it lets you get advice and vent. I really hope your lap will help you with what your going through, could you update when you have had it? I was just told I have endo and I'm switching doc's since mine is doing nothing for me at all not even med's. I wish you the best of luck and just remeber there are a lot of women who know and feel what you are dealing with! All the best.
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Post by stephiegu2 on Dec 19, 2005 22:24:22 GMT -5
Hi, i would just like to say that i kno exactly how u feel!! i am 19 and have just recently found out that i have endo. i was going in for a laproscopy to have some cysts removed. and when i woke up i found out that i had endo! this was really suprising for me. i had no idea what it was really. and deff didint knwo that there was no cure. so i kinda got a depressed when i had to go online and read about it. ive got a great bf, whom i have been with for 2 and a half years. its hard when i think about this because i wonder "what if i cant ever have children?" "what if i keep miscarrying?" i worry about these things because hes a wonderful man and he deff deserves children!! So far i have not gotten pregnant but i am not trying to let it get me down! though that is really hard at times. i am very emotional anwyas If u ever need somone to talk to i would be happy to share my thoughts with u.... i really do Understand u!! take care and god bless.... stephanie
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avonp
Junior Member
My chico
Posts: 62
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Post by avonp on Dec 20, 2005 8:27:03 GMT -5
hi girl, Thanks for all your posts! it helped me a lot. Stephiegu2, if you want to talk some time my e-mail is pavon_nkeough@yahoo.ca just let me know in the subject its you cuz i delete e-mail i don't recognize. I'm only 20 and got a great bf to and talking about it sometimes help! And stay positive! ;D Well thanks to you all girls! Pascale
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Post by erzulie on Dec 20, 2005 11:11:46 GMT -5
I'm going a little off topic, but I see a lot of people on this forum mentioning feeling depressed about possibly not being able to have kids, and I hope I can comfort you all by saying that ENDOMETRIOSIS CAN IN NO WAY PREVENT YOU FROM HAVING CHILDREN. I understand that some of you are really in love with the idea of being pregnant, and it's very disappointing to think that you might not be able to do it. I really do understand that, and you've got every right to be sad about that. But, the whole reason for wanting to get pregnant is so you can have kids, right? You're only missing a small part of the mothering experience by missing out on the pregnancy. Every day there are people giving birth to kids they can't keep, and worse yet, kids bouncing around between foster homes because their parents didn't deserve to keep them. Do you know what's happening to these kids? Not much, because not enough people want to adopt them. I work with kids, and I see foster children on a regular basis. They are really sweet kids, not the miniature convicts that everyone seems to think foster children are. I decided a few years ago that I don't care if I can get pregnant or not, I'm going to adopt either way. Motherhood is supposed to be selfless, right? What could be more selfless than becoming a mother to the kids nobody else wants? Those of you who are trying to get pregnant and aren't having much luck, please remember that you still can have kids, and that those who CAN get pregnant have nothign on those who can't. So you miss out on the opportunity to have a baby inside of you. That's a bummer, but think of what you've done that people who ahve kids the "normal" way don't do: you've saved a kid that nobody else wanted from a fate more horrible than anything you can imagine. You're a hero in the way that other mothers can't be! So let them gloat over their pregnancies. They had soemthing you couldn't have, and you've got something they don't have. You're even. So stop giving this disease more credit than it deserves! Of COURSE you can have children! You can have as many as you want! Don't EVER let anyoen tell you you can't!
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Post by lynette on Dec 20, 2005 19:31:26 GMT -5
I agree. Pregnancy is only a phase. I have had one child, I love her dearly, but I hated being pregnant. I am not going to be able to have more children naturally, but that doesn't mean I can't have any more kids. I live in an area where there are so many children who are looking to be loved. Some do get in trouble, but they are just looking to be loved and have attention. We can't let this disease get the best of us.
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Post by Janet on Dec 21, 2005 15:45:26 GMT -5
I agree with previousl statements and just wanted to add it doesn't mean you can't get pregnant. Not all women with endometriosis have fertility problems. But as a single mother I urge you to consider getting married before you actively try to have a baby. It is hard work to do it alone and all the good intentions mean nothing when you are left alone to carry all the weight.
Janet
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Post by alaina on Jan 10, 2006 20:42:14 GMT -5
I just wanted to say thank you all with your positive feedback to those of us feeling helpless. I have been living with the depression endo brings.. esp. when it comes to getting pregnant. I've been trying for a little over a year now and I intend to keep trying. Yes I realize that adoption is always an option... if all else fails... But I can't help but feel a little of "Why me?"when it comes to having endometriosis and fertility issues. It's such a hard thing to accept... that I was not" picked "to bring another life into this world. The best way that I deal with these emotions is by trying to just live my life like I never discovered that I had this darn disease and take each day as it comes.Not to pretend I don't have it (because you can't hide from the pain of it sometimes), but to think more positively...whatever's meant to be...will happen one day!
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