|
Post by pretty on Nov 16, 2010 16:22:04 GMT -5
So, one month post surgery have an incredible amount of pain. Had been feeling better and stronger until Sunday night; stabbing pain in left ovary region followed by a hot, persistent ache just above the ovary that matured into a VERY NASTY pain that lasted about 10 hours. Went to doctor. Had ultrasound and urine testing to rule out UTI or bladder infection. Turns out to be.... wait for it.... probably just endo, again. The amount of defeat and grief I feel is pretty tremendous. I know I do need to be patient with my body. It's cranking up to try to put these re-constructed ovaries back to work. I think the pain was ovulation, which means in a few weeks, I'll probably get a period, too. I am sitting at my desk after missing yet another day and a half of work, just to find out it's most likely 'just' endo.... I have to lean back in my chair, it hurts so bad. I feel like an old, broke down horse that just walks through it's paces. Honestly the pain isn't as bad as the knowledge that I just had 8 hours of surgery, miles of endo removed, and still have this pain.... I think I will post this in emotional support. God knows I need it.
|
|
|
Post by chicagogal2 on Nov 16, 2010 19:22:55 GMT -5
Pretty,
I'm sorry to hear this. Gosh, I hate endo. Maybe it's just healing pains from the surgery? I am sending you positive vibes and well wishes! Hugs!
|
|
|
Post by Karen on Nov 16, 2010 20:28:14 GMT -5
I remember how crushed I was when my pain was back 2 weeks later. I feel you, girl. Don't freak out too much, though - give your body some time to figure out what it's 'new' normal is. And then kick the 'new' normal's ass!
|
|
|
Post by sunshine78 on Nov 16, 2010 21:13:11 GMT -5
Felt the same way, only when the doc told my mom that I "should feel much better" one it was done, something inside of me said, "Yeah - we'll just wait and see." I had an easy cycle... about 6 months later, but just the one. I did expect not to be in pain all the time, after that, but that was not the case.
Don't let it get you down, too much, though - the post-surgery month or even two is a little difficult, b/c as Karen said, your bod's still trying to figure out where the baseline is. Just take care of you, girl.
|
|
|
Post by pretty on Nov 16, 2010 21:38:58 GMT -5
thanks guys, I guess I just needed to vent.
|
|
|
Post by chicagogal2 on Nov 17, 2010 13:30:51 GMT -5
Vent away anytime - we're here for you! I hope you feel better today!!!
|
|
|
Post by hellsbells on Nov 17, 2010 14:11:35 GMT -5
Big hugs, be patient x
|
|
|
Post by Tamela on Nov 17, 2010 15:39:34 GMT -5
That sucks big ones Pretty. Just rest and take care of yourself. Hopefully this passes and you start to feel better!!!
|
|
|
Post by omaklackey on Nov 17, 2010 16:56:11 GMT -5
I'm sorry pretty, When this happened to me everyone kept telling me it was okay and I needed to heal... Turned out My body was making more, and more endo and not getting better. Several times it happened though it was a cyst. Did they check to see if it was a new ovarian cyst when they did the ultrasound?
|
|
|
Post by JC on Nov 18, 2010 11:25:52 GMT -5
I feel the need to clarify since the phrase "everyone kept telling me" could be interpreted as the members and staff of this board. We did not tell you that you were ok. We always tell people they need time to heal after a surgery because it's a FACT. We do not say that to blame the pain we feel on the healing process. We say this to emphasize the need to give your body time to heal before you come to the conclusion that the endo is back. It took me a total of 2 months before I felt "healed" from the surgery. Then a month after that, the endo came back. Pain should never be ignored but if you JUST had surgery then the obvious cause is the amount of work done by the surgeon. Let it heal and if the pain proceeds too long then it's definitely a reason for concern.
I'm so very sorry you're going through this Pretty. We love you so much and I were really hopeful that this surgery would help. We do stress the need to give time to heal because we've all thought we felt better and then gone and done too much. Then we end up knocked on our butts as if we were starting all over again. I really hope you feel better Pretty. Any updates?
|
|
|
Post by omaklackey on Nov 18, 2010 12:06:20 GMT -5
everyone was my family and friends here... not you guys! (just wanted to clarify)
|
|
|
Post by cherry on Nov 18, 2010 12:12:49 GMT -5
So not everyone then. Not anyone who knows very much about endo either. Because as clarified here, we as a staff and a board would definitely have only given support and opinions and asked you to see your doctor. So you can see how 'everyone' sounds like it's pointing the finger in this direction, yes?
|
|
|
Post by pretty on Nov 18, 2010 13:51:18 GMT -5
Yeah I am feeling better. Had 3 days of stabbing ovary pain which then switched over to the right side from the left. I can't interpret this, just need to wait it out. I was first convinced it was my re-built ovary trying to ovulate. When it went on for 3 days accompanied by a hot ache just above it I thought that was just referred pain or possibly something in my kidney or stomach not going right, or just having the pain spread out because it was so sharp. Then yesterday I had sharp pain in RIGHTovary. WTF! But again, have to just wait it out. Could be that I tried to ovulate on the left and it didn't happen, so it switched?
So I did the only thing I could do: I sat my a$$ down last night and read ALL of TCOYF! Karen, you should be proud. that was one easy read after only looking at a page at a time for months and months. I am now feeling a lot calmer about the whole mess. Our bodies are amazing wonderful creations and there is a lot we can do (I now realize) to understand its myriad signals, signs, and revelations..... Today after work I'm going to get a new digital thermometer, and to involve old grumpy pants, I'm insisting he has to take my temp at 6:15 every morning. Poor hubby. I just really want him involved. It's his fertility too dammit. Plus I have been very miserable and misery loves company so this will make me feel a teeny tiny bit better.
As far as pain goes, it's really receded, but still there if you know what I mean. As the day goes by and I get tired, it comes on stronger. By 3 pm yesterday, I had worked for 6 hours, gone grocery shopping, and walked around quite a bit. By the time I got home what was a little pain had grown. I am getting to the point where I see my threshold coming, instead of looking back at it going "oh sh!t, I did too much AGAIN" so the formula is work for 5 hours and GET IN BED for a long nap with feet up, then after the nap I can go ahead and tidy the house, play with the dog, or make dinner whatever...... lol I really love you guys thank you so much for the acceptance, the friendship, and the advice. XXXXOOOOO
|
|
|
Post by JC on Nov 18, 2010 15:45:28 GMT -5
"It's his fertility too." HAHA that's very well said! It's very true! I'm glad you're finding a balance. I really hope that pain is getting better.
|
|
|
Post by Karen on Nov 18, 2010 18:26:32 GMT -5
Pretty, you get the gold star for the day! Interesting how it all comes together once you know how it all works, eh? I think you have a good plan, and I think it's good to get hubby involved. With a friend of mine, she had her husband record her cm and temp every day. Oh, and did you know TCOYC has online software so you can track it all? And as for your pain, yes, you NEED to take it easy! I remember 2 weeks after my lap thinking I was ready to start running again. After 2 miles on the track, I realized how WRONG I was! Think about how much time you think it'll take you to heal, then triple it or something like that. As for your ovary pain, this may be a stretch, but has PCOS every been investigated? Here's hoping things have settled down for a bit, and maybe your cycles will be a bit more on track. And just think - once you start temping, you'll KNOW if it was ovulation pain or not!
|
|