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Post by Karen on Sept 20, 2010 6:07:48 GMT -5
So glad you're getting another opinion! I believe the CEC is where Italialynn went, might want to touch base with her about her experience! Glad you're getting a second opinion and no matter what happens or what they suggest, YES, you are taking control of your life! Good luck, and let us know how it goes!
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Post by italialynn on Sept 20, 2010 10:21:15 GMT -5
Hi Amber! Yes, as Karen mentioned, I did have surgery at the CEC in April of 2009. Overall, it was a FABULOUS experience. I've never been treated with such compassion and respect than I did from the staff at that hospital and Dr's office. I'd be happy to answer any questions at all...I have a place a recommend staying (I've stayed there twice, once for my surgery and again for my sister's). It was clean, spacious, and within a 5 minute drive to the hospital. Just PM if you want to chat about it. Unfortunately I didn't find the relief I was hoping for there, but I've never regretted going a day in my life. I think there's a whole thread on it somewhere...let me have a look around and I'll post it if I find it.
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Post by italialynn on Sept 20, 2010 10:28:26 GMT -5
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Post by amber84 on Sept 20, 2010 11:21:13 GMT -5
WOW I'm so glad to find someone here that has been to the CEC! I read a lot of the reviews by patients through there Facebook page and I have done extensive research on both Dr. Albee and Dr. Sinervo. I will read your diary and I will DEFINITELY send you a PM to chat more! Thank you for the offer. Right now I am getting all the paperwork filled out and writing up my narrative. Should be interesting. I'll tell you one thing...it is so refreshing to be filling out paperwork and answering questions that ALL relate to ME and MY disease. It is specific. Makes you feel not so crazy! I will talk with you soon! Karen- thank you thank you thank you! You have been such an awesome cheerleader for me and you are always very balanced and not opinionated. I really appreciate that. I share with my husband the things you write and he thinks your great too! I'm so thankful for this website and all the ladies here!!!
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Post by JC on Sept 20, 2010 12:37:47 GMT -5
This is a great connection! So cool that you can talk to Italialynn and her experiences. I'm glad you're getting a second opinion. Keep us updated!
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Post by amber84 on Sept 29, 2010 10:22:07 GMT -5
So ladies.....I have amazing news!!! Are you ready??? On Monday Dr. Sinervo called me from the CEC. He said, "After reviewing your records I am confident that we have a 75% chance of saving your organs and restoring fertility." AAAAAHHHHHHHH!!!!! CAN YOU BELIEVE IT?!?!?! I was supposed to be going in for my Hysto next week on Mon the 4th!!!!! And now...everything has changed. I feel such a burden lifted off my shoulders and I keep crying just thinking about what he said. So when is the big day!?!?!?! OCTOBER 20TH!! October 20th- MY NEW BEGINNING!!! I am going to keep a diary of everything...the trip, the hospital, the hotel, how I feel...everything. I will start a new thread when it comes time. JUST A LITTLE WHILE LONGER!!!
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Post by Karen on Sept 29, 2010 13:01:09 GMT -5
I am so glad you'll be in good hands!! I really hope you'll take this with a cautiously optimistic eye, but would certainly be just as excited as you are! That's coming up so fast - incredible!!
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Post by hellsbells on Sept 29, 2010 13:28:34 GMT -5
Aww that's great news, please keep us posted and take care!
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Post by pretty on Sept 29, 2010 18:29:51 GMT -5
Oh sweetie! that's freakin AWESOME! just nice to have some hope once in a while.
My excision is Oct 15th, so we'll be recovering together! yay!
Looking forward to more good news.....
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