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Post by uncomfortable on Oct 5, 2010 10:36:28 GMT -5
I think my body is slowly killing me from the inside out. Yesterday was one of the worst days I have had in a very very long time. I think I am reaching the end of options. No one gives a sh*t about my health except for me, and no one is really willing to work with me to help me fix it. Apparently I must be dreaming up new symptoms, because according to doctors, they just simply don't exist. I can't afford to feel this way. I need to be working and functional.
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Post by Karen on Oct 5, 2010 12:15:08 GMT -5
Hugs, girl...
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Post by pretty on Oct 5, 2010 13:06:33 GMT -5
yeah, hugs! and a new doctor too! A$$ holes! damn!
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Post by uncomfortable on Oct 5, 2010 17:00:43 GMT -5
lol, well at least I can always get a laugh out of the word censors on this site. I love how it turned my swearing into "nuts"
I appreciate that everyone on here does care, and I thank you for it. I just simply cannot understand why people become doctors, especially if they know so much they don't need to learn new things from their patients. Besides, how can any logical doctor not think about how those symptoms come to be in their text books!?
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Post by Karen on Oct 5, 2010 19:11:58 GMT -5
Well, I think we can rule the all-in-your-head thing. I didn't realize you had a cyst, too - that's not cool! I hope they're not just waiting for it to go away or rupture?? I know you have a strong work ethic, but is there any way you'd be able to get some disability and take some time off and figure it out, get proper care and rest? I know that may seem like a stretch, but if it gets that bad...? Oh, and yes, sh!t=nuts is my favorite of the censors!
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Post by uncomfortable on Nov 5, 2010 19:46:58 GMT -5
A doctor is actually testing my cortisol levels and checking for Addison disease! I'm floored, and not sure what to think, but I also don't want to get my hopes up too high. He actually listened to my symptoms (of chronic nausea) and is going to at least test me for things!!!! on a slightly different note though, I had such a haphazard ultrasound the other day, I really hope it shows enough information. I still have a cyst sitting there, and even if the U/S doesn't show it, I can feel it, and I know it is there. So I am really hoping the one stroke wonder of a U/S tech got the whole picture, so these docs don't think I am lying or making things up, like they did last time. How dare I suggest Provera make my nausea better, its not designed to do that, therefore it doesn't.
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Post by Karen on Nov 5, 2010 20:02:49 GMT -5
Ooooh, yay!! Did he suspect it, or did you have to bring it up? Is he checking other things, too? Please keep us posted!! And do tell, how can an u/s be haphazard?
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Post by uncomfortable on Nov 5, 2010 20:18:10 GMT -5
I'm just a little iffy on if the tech got the whole picture or not. I have a cyst on my left ovary, and she only did two swipes across my abdomen, and neither swipe went to my left side. I understand that you can still "see" things if you don't swipe directly over them, but she didn't even bother to check the other angle from the left side. I asked her if she could see my left side, since she never even went over it, and she said yes, so I am just hoping she got a good view of what is there, and not just a rush job to get me out faster.
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Post by Karen on Nov 14, 2010 14:52:35 GMT -5
Any results yet??
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Post by uncomfortable on Nov 15, 2010 8:29:12 GMT -5
My ultrasound came back clear - but I still have pain and discomfort in the same spot on the left side. So I guess it can't be from a cyst. I don't have any blood test results yet though. I don't like the suspense of waiting.
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Post by KSA on Nov 16, 2010 11:30:35 GMT -5
I am thinking about you hope you get some answers soon. Don't give up and vent as much as you need to on here. The worst part is not knowing.
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Post by omaklackey on Nov 17, 2010 23:26:24 GMT -5
I was just getting caught up with this post and I wouldn't rule out endo yet. For one thing they told me my ovaries were "normal" and when they did an actual biopsy they were covered in chocolate cysts that they thought were "normal ovarian follicles"... oops. And also Adenomyosis (endometriosis in the uterus) which needs a biopsy to diagnose.. The other thing is... (and this is where I struggle so I totally understand) If you think something is wrong... IT PROBABLY IS. so don't give up. I have wanted to so bad recently as my symptoms have gotten worse and worse and I often feel like I'm going crazy, especially as test after test comes back negative. I was so sick of it I refused to go to the doctors for a long time but I realized I have to trust myself. So don't give up... AND CYBER HUGS! Your not alone in the "what the H*ll is wrong with me" rant.
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Post by uncomfortable on Nov 18, 2010 6:05:31 GMT -5
Thanks.... I have been having an especially difficult time lately. I don't feel ok but I haven't been able to find many doctors willing to help me. Also everything else in life has been kinda crap lately - AND my computer died so I haven't and won't be able to be on here much for a while. I appreciate you guys pulling for me though - if definitely helps to know I am not imagining how I feel.
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Post by Karen on Nov 18, 2010 6:38:48 GMT -5
When it rains it pours, right? Big hugs, and pop in when you can!
And for goodness sakes, do you STILL not have your test results back??
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Post by uncomfortable on Dec 16, 2010 16:34:17 GMT -5
OK, So the results are IN. .....well Sorta.
I was still having some wonky pain, but the first ultrasound I had came back clear. (I found a new GP a while back btw - she's awesome) So I went in to the GP and she sent me for the most thorough ultrasound I've ever had. It was an experience I don't want to repeat (but I have to in 2 months anyway)
I got the results yesterday: a Large hemorrhagic cyst on the left, and a small one on the right. Its about the same size, slightly larger, on the left as it was 7 months ago. The ultrasound report suggests a follow up in two months to rule out endometrioma. So today I had a gyne appointment, and I am now booked for another lap. She wants to drain the cyst, and have another look around. Based on the ultrasound report, she thinks its more likely to be an endometrioma.
I kind of hope it is. My symptoms keep developing no matter what my diagnosis, but at this point I would just love to be able to call it something.
No word back on the cortisol yet, so I am assuming all was A-OK, otherwise they should have called by now.
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