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Post by cherry on Jan 9, 2010 15:06:12 GMT -5
Yeah your gynae is a dumbass. Now that I know why endo doesn't show up on u/s (unless a cyst or other fluid filled'thing) I'm staggered that doctors don't seem to know/take any notice of this! If any friends can recommend a doc who is sympathetic and caring especially with chronic illness or gynae problems, that might be the best thing to look for. Otherwise finding a gynae who specifically gives a hoot about endo may be like searching for a needle in a hay stack.
Eep I meant your GP is.
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Post by hellsbells on Jan 9, 2010 15:11:22 GMT -5
Every symptom I threw at him: 'Yes...yes....it's IBS'.
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Post by cherry on Jan 9, 2010 15:31:52 GMT -5
Grrr my old gynae pulled that one, 6 months later I had extensive excision cos my new gynae found that I had stage 3 endo aka 'IBS' (I didn't even have any poopy problems to have IBS!)
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Post by hellsbells on Jan 9, 2010 15:38:38 GMT -5
That's a disgrace. At least I did/do have IBS symptoms, but I just knew it wasn't all down to that. I knew. I was diagnosed with IBS when I was about 21, and as soon as I mentioned that, that's all he said. But my symptoms had really really changed and he just wouldn't listen. I'm £624 worse off because that man wouldn't listen to me. I think this belongs in 'Rant about your doctor' thread. Lol. DO we have one? I know there's a Rave one.
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cazza
New Member
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Post by cazza on Feb 11, 2010 4:15:01 GMT -5
on the 22nd of jan i had a laporoscopy and stage 3 endo was found and treated. I am nearly three weeks out of surgery and am really fatigued more than the first two weeks.
What was your recovery like after surgery. How long were you tired for?
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Post by pamelaj on Feb 11, 2010 7:22:21 GMT -5
Cazza...unfortunately everyone's body recovers differently, depending on what exactly they did. Me personally, i took 2 weeks off work after mine and still needed more time after that
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Post by Karen on Feb 11, 2010 7:29:43 GMT -5
I was wiped out for at least a good 2 weeks, then went through bouts of extreme lethargy, just couldn't do much no matter how much I tried. It could also have to do with where you're at in your cycle in addition to the lap. Keep an eye on it, and if it continues to be bad or gets worse, consider talking to your doc.
How's your quality of sleep? Are you eating healthy foods that are easier for your body to process, drinking lots of water? When your body is recovering, those things are incredibly important!!
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Post by sequin on Feb 11, 2010 11:10:36 GMT -5
It took me over three weeks before I felt like myself again, physically and mentally. I remember in the third week walking half a mile to the store and not being sure I was going to make it. Remember, your body went through a lot during the lap. Take it easy.
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Post by rosanne on Feb 11, 2010 12:30:13 GMT -5
I had my lap 5th Jan, and I'm still feeling quite tired esp when I do physical things, even little things like washing up and a bit of hoovering exhausts me. I've had to spend most of today in bed because I didn't sleep too well last night and one of my wounds was bothering me. I've had some better days though, like last weekend I was more my normal self. It's very up and down. Just have to be careful and rest as much as you can. Your body's telling you, you need to rest and heal! I think give it time, you'll feel stronger. I was worried about feeling tired and having other symptoms too, but since I posted a thread on the 'pain and advice' section, I've felt re-assured by others with similar experiences.
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Post by hellsbells on Feb 11, 2010 13:44:51 GMT -5
Mine was December 22nd and I still have off days - be good to your body and take your time.
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cazza
New Member
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Post by cazza on Feb 15, 2010 4:26:35 GMT -5
Hi all
I was ok for the first 2 weeks just a bit fatigued but it has gotten alot worse in the last week. Is this normal?
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Post by hellsbells on Feb 15, 2010 13:34:14 GMT -5
Who knows? Your body will still be healing. It was about week 3 for me when things kicked up a notch again. I'd call your doc and check, just to put your mind at ease.
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Post by angiemarie on Feb 17, 2010 1:33:49 GMT -5
I took 6 days off from work when I had my lap done (Jan 26th). I'm seriously thinking about using some vacation days just to rest. Today I'm completely and totally drained of energy. I worked a 10 hour shift and didn't think I was going to make it to the end of my shift at all.
Everyone's bodies are different. Some heal faster than others. Like the others said...our bodies went through a lot in that surgery. We really have no idea how much. This may be a way that our bodies are telling us to take it easier.
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eva
New Member
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Post by eva on Mar 17, 2010 5:01:42 GMT -5
Hey, Just read this thread and wondered how everyone is feeling now since Jan?
I had my lap yesterday and got home this morning. Had that hysteroscopy, D&C and the mirena fitted too. They took endo off my right side (cant be more specific than that as the consultant went home after my op). I came round no probs but you know when you get that groggy half asleep still feeling, well I was in that stage and my surgeon was standing by the doorway, I remember asking if endo was there and he replied you had it mild on your right side but we removed it all. I didnt ask any more questions as I think I smiled and drifted back off. When I woke up again I asked when ward round was so I could hear all about it, and the nurse laughed and said he did tell you about it don't you remember? Great I missed my chance to ask where, what, why and how can a mild bit of endo give me that much pain!
Anyway Im back home now and currently feeling ok although I'm certain someone beat me up in there - my chest feels kicked in! Pain is so so, but Im wacking co-codamol and ibuprofen down me until I visit my GP when I feel up to leaving the house.
I sympathise so so much with anyone who has anything worse than mild! I could have sworn Id have been riddled with the stuff as the pain got so bad, what a wuss that it was only mild!
I also wanted to ask (and I know it sounds daft) but I really thought I would instantly feel relieved of the leg pain after they had removed the endo, only I still feel it. I understand I would feel tender but I thought that original pain would go. This is just me wanting a magic wand I guess, Im sure it will go away slowly. All in all Ive had a really positive experience so far and day 1 recovery in bed is fabulous (and Im so making the most of it)!
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Post by JC on Mar 17, 2010 5:48:25 GMT -5
Glad you finally had your surgery! I just want to clarify, you said you had a hysteroscopy? Did they do a laproscopy too? I just want to clarify what they did because a hysteroscopy looks inside the uterus, and endometriosis is outside the uterus. Now this is just me talking in lay person terms, but it doesn't really make quite much sense to me to treat endometriosis from the inside of the uterus when the disease isn't there. Just for clarity, I would encourage you to see exactly what they did so that you know you've been treated properly. I guess the easiest way to clarify is to ask you, do you have incisions on your belly?? Having surgery can be bittersweet sometimes. For a lot of us, we felt instant relief, some others had a long recovery. Personally, I was sore for about a week but definitely noticed a difference in the tightness I used to feel in the abdomen. I didn't have it as severe as everyone else here and I can relate to you when you say you felt like a wuss for being in so much pain. Some women can have it really bad and not be in a whole lot of pain, and there's women like us who have it mildly and feel tons of pain. We experience this differently. I hope you have a speedy recovery! Keep us posted on your progress!
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