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Post by nibletz on Jul 24, 2013 12:56:54 GMT -5
Ok so I am 3 weeks post lap however things have been painful as hell...weeks 1 was mainly resting on sofa in the corner only lil trips to loo or odd cup of tea but lovely mommy in law looked after me n father iu law n hubby....by day 4 post lap id stopped surgical bleeding had a 2 day break n started periods first 2 days was bad but I could get from bed to sofa lol day 3 for 3 days I was in bed n crying almost all the time n screaming in pain could barely talk n that week was when my bro in law n his family n sis in law n her family came over so I couldnt even go out with them was just at home in bed which thankfully they completely understood as tey know I dont keep qell n had just had surgery...anyway my period was the worst ever I can remember but stopped bleeding after 6 days...which was last Monday however I am still in alot of pain and its like stabbing sharp pains and like someone is ripping apart my uterus n ovaries too much movement makes it worse and also I constantly feel nauseous n no appetite I expected the nausea to stop after a few days
So as I was worried over all the pain n nausea n no appetite I went to see my gp yesterday evening who took a urine sample thinking it could possibly be a uti but all clear on that front and she then said up your morphine (but no advice by how much or dont exceed by such n such amount) mind im trying not to take the morphine all the tine as do not want to rely ob it solely or addicted she also advised that my post op is in august 22nd and to phone my gynae and try get in sooner explain the synptoms etc etc so i did and thankfully theyve fitted me in tomorrow morning...
My question is (after all my rambling) is it nornal 3 weeks post lap to stikl be I pains well these sort of pains? And 2 to still feel this nauseous?
I think I sgould mention me n hubby have been having u protected sex recently since lap could it be too soon for sex? Could it be implantation pains? Although we are not trying for a baby we do know the consequences lol coukd nausea be rekated to anything else?
Any advice or tips or what to look for or questions to ask tomorrow please do reply im not sure what to think n trying to put on a brave face as hubby cant come tomorrow but he will drop me off to hospital he saw soneone today about youth work and they asked him to come in again tomorrow so im feeling a bit lost xxx
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Post by hellsbells on Jul 24, 2013 14:44:06 GMT -5
Did you have laser or excision? After excision it's quite normal to have pain up to and beyond 12 weeks post surgery (as I recently found out!). What did your doc say about sex after lap? I'm thinking it maybe is a bit too soon...
Just be honest at your appointment tomorrow and I'm sure they'll put your mind at ease
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Post by nibletz on Jul 24, 2013 15:06:13 GMT -5
Thanks hells I had it cauterised and was a tiby superficial spot of endo everything else was perfect... I'll let hubby know im off limits lol And thanks I will tell my gynae everything so she is aware and can advise accordingly xxx
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Post by nibletz on Jul 25, 2013 15:51:02 GMT -5
Just an update from post lap today...
So gynae basically said I have suspected adenomyosis and only other option I have is to remove uterus completely however as I have no kids and am only 25 thats not an option and it may be good to have one as its been known to help...and she is now putting me on combined pill for 3 months no break then after 3 months have a break n then continue n see her in 4 months I told gynae me n hubby have been having unprotected sex and she wait till your next period if u dont have one do a test and then if you have a period we'll start on pill... Shes basically pushing towards a pregnancy and see how I go after then if it continues remove uterus as she dont wanna remove it and then I want or decide to have kids after its done... So although id love to have a child hubby doesnt as he already has 9 from previous marriage and am kinda scared to broach the subject matter any advice would be helpful as I feel pretty lost scared down n not sure what to think xxxx
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Post by chibineko717 on Jan 19, 2014 14:12:33 GMT -5
I'm a little past one week since surgery. I just got home last night. I had some complications after the surgery. My liver was lacerated and I needed a blood transfusion 2 days after surgery. I was sent to the ICU, where the care was worse then the regular floor. I was put on strict bed rest for a few days and was not allowed to drink water. Each time I had a bowel movement, I would bleed a lot which helped lead to the need for a transfusion. The also kept pumping a lot of fluid into me which made me swell and cause my blood count to go down. It took the ICU over 2 and a half hours to get an IV in to do the transfusion. I felt like a pincushion. They were using a sonogram to help find the veins, but many were too small or had a lot of scar tissue around. It wasn't until the 5th day post op that they put in a picc line. That procedure was also painful and had to be done twice since my veins are very small.
I was so thankful when I was released back to the regular floor where the nurses are more caring and seem to get things done faster. When I asked to use the bed pan in the ICU, they never came. Thankfully my mom was there to help since I went 3 times before the ICU nurses came to check on me. Once I was back on the regular floor, I began to feel better and heal faster.
The doctor took my uterus and right ovary. They were suck to my bowels again. The endo was pretty bad. I had a bowel resection where I lost about 6 inches of my colon. The endo on my diaphragm was still only at partial thickness so it was only lasered off. I asked my doctors why I was coughing up blood with my periods, they said that I will have to have a bronchoscopy done to check my lungs.
I'm feeling better. The pain meds make me a little dizzy. I'm glad I had the hyst. It no longer feels like I'm being ripped apart. Thanks everyone for your prayers and hopes for recovery.
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Post by Karen on Jan 19, 2014 15:28:52 GMT -5
I'm sorry you had to go through that, but I'm glad you're home. Wishing you a quick recovery and relief!
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Emily
Full Member
Posts: 148
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Post by Emily on Jan 19, 2014 16:47:11 GMT -5
Wow, that must have been awful. So glad that you are at home and healing up.
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Post by nibletz on Jan 23, 2014 13:26:51 GMT -5
Sorry for all the experiences you had chibi i pray you heal well and feel better soon as love and prayers xxx
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dmags
New Member
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Post by dmags on May 16, 2014 1:52:53 GMT -5
Hi everyone. I had my first lap yesterday and was surprised at how well I felt most of the day (and how little I slept once I was home!) The anesthesiologist warned me that the drugs could give me a false sense of feeling good the first day, and boy was she right! It's almost 2 a.m. here and I've been up walking a bit because I'm too uncomfortable to sleep. I still have 1 1/2 hours before I can take the next pain pill. Walking has helped pass some gas, but my stomach feels bloated and miserable. Some of the gas is in my shoulders now that I'm up, which is uncomfortable but I can deal with it for awhile. I'm thinking maybe I'll go make some ginger tea and sip on that before I go back to bed... I was surprised at my surgery results. My dr. told my husband while I was in recovery that she just found a couple of small spots, he think she said on the ovary/ovaries, but I will get to see pics and learn more in 2 weeks at my follow up. I guess it is true that a small amount of endo can cause a lot of cramping/pain! She also mentioned that if this doesn't help my cramping, she'll want to send me to GI to make sure it's not coming from there. I hope this does it!
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mskim
New Member
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Post by mskim on Nov 15, 2014 20:36:41 GMT -5
Good evening! I'm sitting here 1 week post op and thought I'd give an update. I've had a terrible time with nausea, so eating has been a roller coaster. Monday when I had surgery, i vomited twice, then did it again on Tuesday. I figured it was the aftermath of the anesthesia. I've been trying to drink tons of water and juices to keep hydrated, but it doesn't seem to be enough! Pain is now more of discomfort around my right side and ovary. The doctor couldn't do anything once he was inside because my bowels, bladder, intestines, uterus, and ovaries are a tangled mess with endo. He did do a D&C which I've been having minimal bleeding (still a bit of bleeding - had some clotting the other day). That as really all he did. I go back on the 26th for my follow up and will get to see pictures (yikes!) and learn more about what's next. Just in speaking with the nurse at his office, I'm guessing I'll need a more in-depth surgery involving a colorectal surgeon to assist him. There was mention of going on some drug to help shrink things, but my hubby couldn't remember what it was called.right now,I'm rocking a serious case of heartburn and I'd really love to poo...how's that for TMI?! :-)
My doctor was literally in shock that I wasn't having more pain/issues than I complained of with hiw bad it is...it's such an odd disease with how differently it impacts everyone.
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Post by nibletz on Dec 3, 2014 17:07:06 GMT -5
Hey hows ur recovery going? Any better now post op? Have you got the full l/d on ur surgery? Hipe ur recovering well x
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mskim
New Member
Posts: 28
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Post by mskim on Dec 4, 2014 10:37:48 GMT -5
I'm recovering well - just getting my strength back and all that fun stuff. Follow Up wasn't amazing - was told the endo is so advanced that I'll either need to go on Lupron or have more invasive surgery to try to separate my organs and remove what he can. Said there is a good possibility that still wouldn't help with things, and I may lose one or both ovaries, or my uterus just depending on how things go while he's in there.
He tried with the lap to do what he could, but he didn't have enough room to maneuver with the robot, and he didn't want to do anything further without my knowledge/consent, which I appreciate. So...we're trying to decide what to do. I've heard both good and bad on Lupron, and I'm weighing the potential for surgery...I'm very confident in my doctor's abilities and knowledge of treating endo, but I just wish the decision were easier to make. How do I even know that surgery will result in preserving my fertility? I'm not sure I'm ready to make that decision yet (33 next month, married 12 years and have never been pregnant...I'm an only child too, so that's always lovely for added pressure. Thankfully my mom is totally understanding of the condition I'm in and what our options are. My MIL on the other hand doesn't quite understand...but she already has 2 grandkids (which she never sees...but...whatever)).
I just want to get through the holidays and then try to figure things out...
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Post by nibletz on Dec 4, 2014 15:06:36 GMT -5
Hugs
i cant imagine what your going through....try enjoy the holidays and relax and its good your mother understands and hubby is by your side try not to stress about fertility theres so many options these days if it comes to it and they need to remove everything you can ask them tsave eggs? And surrogate? Well hopefully it dont come to it god willing and ypu can carry ypur own baby
Always here if u need to talk xx
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