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Post by painpainpain on May 20, 2007 8:46:32 GMT -5
I feel the same way about the endo...I was diagnosed a year ago and a bit and didn't really think anything of it. Then when January hit and I was in soooo much pain, it was only then it really started to hit home that this disease was inside me brewing...I think I've had a few breakdowns over the last little while that I would consider major. If it wasn't for my mom and this board I really don't know how I would have gotten through it. It really doesn't help your mental state when you have docs that are questioning your pain. I'm so at the point now that I don't care what they say I just keep repeating myself until they hear me. I have kinda plateaued over the last month with my emotions just for the simple fact that there may be something else wrong other than the endo so waiting for my test dates to get here and then deal with whatever comes with that. I hate being an emotional mess and can totally understand what you are going through. Just have faith that all will work out and keep your chin up. Easier said then done I know but we have to find that something inside us to keep us going so we can have the strength and energy it takes to make sure this disease doesn't consume our lives.
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Post by gemini on May 20, 2007 9:34:37 GMT -5
I am so shocked that doctors are still so naive about this disease...and we have to shout it from the rooftops " that we're in pain" before any notice is taken.
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Post by Patti on Aug 31, 2007 13:13:57 GMT -5
I can totally relate to you. Having Endo or Adenomyosis is no fun...trust me i've dealt with both. As silly as it may sound I did find that with the Endo there was more relief when I had a hot bath or used a heating pad the day or so before my period was to start. I tried everything out there for treatment for the disease and found that pregnancy was the only cure...only it made the Adenomyosis start up. I'm 29 with one child and having your GP tell you hysterectomy just sent me for a tail spin. Of course it's something i've heard before - my Gyn told me when i was 14 that it would be the end result. After doing some reading I found out that no matter what you do, hysterectomy, hormone treatments, nothing is gauranteed. Removing the hormones (ovaries) creates a whole slew of other problems and makes for even more misery. I guess my suggestion would be to try to find something that helps. Something that doesn't pump your body full of more and more drugs...excercise and abdominal stretches helped me as well as heat. And a good support system like this board.
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